skip to main | skip to sidebar

Pages

Home
About Ellie
Blog Posts
Gallery
Donations
Contact Us

Loving Little Ellie

Seeking answers for our daughter's undiagnosed disease.

Ads 468x60px

Donations

To learn more about this amazing organization, please visit:

www.SWANUSA.org
OR
Donate through Ellie's Project
http://www.firstgiving.com/fundraiser/SWAN/elliesproject

Email This BlogThis!Share to Twitter Share to Facebook Share to Pinterest

No comments:

Post a Comment

Subscribe to: Posts (Atom)

Social Icons

Ellie's Project

Ellie's Project

Powered by Blogger.

Blog Archive

▼ 2015 (2)
- ▼ December (1)
  - The Smallest Preschooler
- ► January (1)

► 2014 (2)
- ► July (1)
- ► May (1)

► 2013 (6)
- ► December (1)
- ► July (1)
- ► April (1)
- ► February (3)

► 2012 (14)
- ► December (1)
- ► November (2)
- ► August (2)
- ► April (2)
- ► March (1)
- ► February (3)
- ► January (3)

Ellie's Project

Popular Posts

Why it will NEVER be enough

If you are new to Ellie's Story, START HERE So quietly swept under the surface of existence, this underground world of unknown fears i...
When it all began...

Pediatrician, Genetics, Neurology, Audiology, Endocrinology, Nutrition, Opthamology, Plagiocephaly, Physical Therapy, Occupational Th...
In the quiet hours...

In the quiet hours... When I finally get a few moments of silence, I feel an unsettling nervousness. If I am not at an appointment or ...
Every Step of the Way

A little different from my usual blog but felt this was too important not to share. When you find someone who makes such a difference in yo...
Uncertainty.

It is the loneliest place to be when you know something terrible is happening to your child before any doctors can confirm it. They migh...
The Nameless One

If you are new click here ! Everyone who has child with a named disease or syndrome has had to go through some sort of undiagnosed jour...
UN-Diagnosed

This quiet hesitation that has been eagerly lingering in the back of my heart... Ellie does NOT have Paternal UPD 14 The lab was...
Hungry for Help

I have not wanted to talk about our feeding issues for a long time because they cause so much pain in my heart. This has been absolutely t...
Our Visit to the National Institutes of Health - Undiagnosed Disease Program

Our visit to the National Institutes of Health - Undiagnosed Disease Program and what we learned. The highly anticipated visit to th...
Closing an open heart

I know it has been a long time since my last post. I think going 100% for the last 3+ years has made me so exhausted that I have just wante...

Followers

Copyright (c) 2012 Loving Little Ellie. Template sponsored by String Converter and Calendar View - Part of Just Useful Network