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Ellie's Project
Popular Posts
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Pediatrician, Genetics, Neurology, Audiology, Endocrinology, Nutrition, Opthamology, Plagiocephaly, Physical Therapy, Occupational Th... -
If you are new to Ellie's Story, START HERE So quietly swept under the surface of existence, this underground world of unknown fears i... -
If you are new click here ! Everyone who has child with a named disease or syndrome has had to go through some sort of undiagnosed jour...
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It is the loneliest place to be when you know something terrible is happening to your child before any doctors can confirm it. They migh... -
In the quiet hours... When I finally get a few moments of silence, I feel an unsettling nervousness. If I am not at an appointment or ...
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Ellie has been a strictly breastfed baby. It took us 6 months to perfect nursing and so I was always nervous to bring a bottle into t... -
When I was younger, all that I knew about kids who were "different" was to not stare. We were never told anything about them or w...
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Ellie has a diagnosis. I never thought this day would come but I never stopped hoping and praying it would. A whirlwind of emotio... -
Our visit to the National Institutes of Health - Undiagnosed Disease Program and what we learned. The highly anticipated visit to th... -
One of the weirdest feelings that I can try and explain is the wanting of a positive test result. On the outside, it sounds horrible. Why ...
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